I was given some very good advice today from an incredibly wise woman, “tell ‘em what’s going on!”
and so I shall. This isn’t particularly knitting related, other than the fact that I’m a knitting person, but it will give insight into why I’ve been so sporadic over the last couple of weeks/months/years.
Firstly though, for all the kind and concerned words that I’ve received over the last week or so – my heartfelt thanks! I love you guys!
So, here’s what’s been going on. For many years, I’ve lived with crippling pain that could not be diagnosed, or was totally mis-diagnosed. Finally, my doctor was ready to discuss the possibility of fibromyalgia and since I’d been secretly thinking the same thing, I concurred.
I talked about changing diet, exercise, acupuncture and other things. The doctor assured me that similar patients had tried that route with no success and that he had a medication that would work wonders. It’s called Savella. I was told that there were quite a few side effects, but they would diminish quickly. So, guided by my doc, started the Savella.
The side effects soon became all-consuming. Rapid heart beat, inability to concentrate, panic attacks, dizziness, the hair falling out was a good one – about 1/3 of the front of my head. Awesome! the burns on my face, not so much. I went back to the doc and he told me to stick with it, so I did. The depressive state which came with all this was much more insidious than the blatant hair loss or suddenly bad skin – but much more devastating.
7 weeks into all this, my blood pressure started to shoot off the charts. 176/135 at rest just doesn’t do it for me, so, another call to the doc and a prescription for meds to lower my bp. Meanwhile, the depression was getting worse, and worse. I could see myself sinking into myself, I could see myself deliberately becoming distant from my family and friends. I spent days staring at the wall. Even though I could see what I was doing, knew it wasn’t right, knew it wasn’t healthy or normal, I couldn’t get out of it.
Another trip to the doctor at the beginning of the week and I insisted that he helps me come off the meds – his suggestion? Take some zanax, and once you’ve calmed down, we’ll see.
Now that just sent me over the edge. I convinced myself that this was my new reality. This was the way that I was. I drove myself into such a panic that I ended up in the hospital with severe chest pain, and of course they couldn’t find anything. And of course, I couldn’t tell them that it was the damn meds.
So home I go, and start thinking all those unmentionable things that people think when they feel they are at the end of their rope. And all the while that I’m making elaborate plans to do away with myself, and I’m too lethargic to get off the damn couch, I KNOW, deep down, I’m SCREAMING, that this is not right. I shut down the blog, I shut down twitter and ravelry, I stop going on FB, I don’t answer the phone.
Which is ridiculous! Even when I’m doing these things, I knew it was ridiculous! But it seemed logical to remove myself from everything and take the next step. But I didn’t. and I’m so thankful for that. I don’t know what stopped me, but something did.
I decided to take a half dose of the meds, and hang in there for the next two days taking half doses, responsibly lowering the dosage of the damned evil savella, and 2 days later, I wake up feeling like myself. Clear headed, low blood pressure, no panic attacks, no suicidal thoughts, nothing. Just me.
So here I am, day 4 of the lower meds and feeling so much better. Still not 100% but back to myself. It’s amazing. It’s like the last 2 months have been lived in a tunnel. To come out of it so quickly is very scary – and if I’m honest, I don’t think I know just how low I got. But I’m so incredibly glad that I went the route of lowering the meds with a responsible eye to totally coming off it. If all goes well, in three weeks, I’ll be meds free and ready to face whatever the underlying condition is.
So that’s it. That’s my breakdown, and I feel so much better sharing it and owning it. Because by owning it, I win and it doesn’t win over me.
I’ve been more creative and productive over the last 2 days than I think I have in the last 2 months. I started knitting a sweater yesterday and have a sleeve to do and it’s finished. It just kind of grew out of the needles, a totally holistic process. The yarn was my therapy, I think. And as dippy as that sounds, for those of us who knit, or crochet, or sew, I know that you’ll get it.
So I need to come up with a name for this new creation! I don’t think “Fuck the meds” will be a big seller, so I’m looking for something more hopeful and powerful. Perhaps Bide? That has a nice ring – what do you think?